So Much News!!!! Mia is 4

Friday, September 25th, 2009

I have been thinking about writing an update all month and once again time just seems to be flying by!!

Back to school has gone really well, Harvey is now in year 4 and hopefully being good :-)   He seems happy and is really enjoying seeing all his friends again after the summer holidays.  Mia is going to nursery 4 mornings a week and has a lovely group of friends that she loves to see, so she is definately happy to be there. 

The one year aniversery of Mia’s treatment was marked by returning to swimming classes which Mia has missed over the past year and the start of ballet classes which she is now more than strong enough to do!!!  It is not that she wasn’t able to do these things over the last year but she would not have managed regular lessons due to hospital visits and stays and also long periods of just not feeling up to it, so it’s great that we started this year off with a few new challenges.

There has been lots of reminising over the last few weeks with many discussions about ” this time last year…”  but it has not been a sad time at all, we are so greatful that Mia has been strong and determined and that we have had really good support for us all to come through the year with lots of very happy memories despite the circumstances.  The experience has been very similar in so many ways to that of having your first baby, the trauma of the diagnosis and the uncertainty that comes with it soon becomes part of the routine of your life and although it is hard at times there are so many positives to be found along the way.  We have had to learn new ways of caring for Mia both physically and emotionally we have had to accept that things can change in the blink of an eye so planning anything is very difficult, and our priorities have alltered dramatically, however now 1 year on it all feels familiar and normal and i feel very proud that we have got through a very tough year and we are all settled with our “new” normal.  Having said that I can’t wait to celebrate the completion of treatment and a proper normal next year ;-)

Bestival 2009 was fantastic, beautiful weather, 50,000 people having fun everywhere you turn and great entertainment …. what more could you want?  Mia enjoyed seeing Lily Allen and Mika (so did I) and Scott and Harvey got to see Kraftwerk so everyone was happy.




On the 16th September Mia was 4 !!


The day started early at 6.30 with cries of it’s today, it’s today… Mia was very excited!   Lots of balloons and presents followed before Harvey had to go off to school, Mia had a little time to play before her swimming lesson

and the playdoh proved that it is still popular even when you’re 4.



 Auntie Gemma was staying with us for the week after the Bestival and in the afternoon we set about making a pin the bow on Hello Kitty for Mia’s birthday party on Sunday…






and Mia’s birthday cake to have at teatime.

Mia took ages to blow out all those candles and Harvey was desperate to help out but knew that Mia would tell him off… he was very patient.

The summer is coming to an end…

Tuesday, September 1st, 2009

Hello all,  Thank you for checking in XXX

Mia is still doing fabulously, since I last wrote there has been another camping trip, swimming, scooting, many more beach days and lots of catch ups with friends and family.  Mia has just finished her 5 days of steroids for this month and it was ok… a few dramas but nothing too bad, she definitely feels weak after he vincristine which she has once a month followed by the 5 days of steroid.  She was complaining of leg pains and was very easily defeated by any physical challenges for a few days, but almost as soon as her steroids stop she picks up again and her feisty determination returns.

I cannot believe the summer is nearly over!!!  Harvey goes back to school on Thursday and lots of Mia’s good friends who have already turned 4 will be going to school this year, Mia doesn’t mind that she is staying at nursery (because she loves it) but she will miss her friends that are going to big school!

We have the Bestival coming up in a couple of weeks which we are all looking forward to and we Will also be celebrating Mia’s first anniversary of her treatment, she is a much stronger little girl than she was this time last year and she has shown such courage and bravery in this last year.  However the most important upcoming date will be Mia’s 4th birthday on September 16th……  I must get organised!!  She didn’t have the best of birthdays last year so is definitely expecting a party!

I will update this post with pictures in the next day or so but meanwhile thanks again for all the support XXXx