Your long awaited update is finally here….

Mia’s blood count took a couple of weeks to recover after her intensive treatment finished and there was a little concern that she may have contracted shingles, however she only had a very tiny patch of spots on her shoulder and with a quick course of anti-viral meds she did not become unwell.  That was way back in mid June, just before Harvey’s sports day, where we watched him come first in his running race and second in his obstacle race.  Then another great achievement for Harvey at the end of June he was chosen by his teacher to recieve pupil of the month award for excellent work and a really positive attitude at school, we were so proud of Harvey because he has always known that he needs to follow the rules at school but he doesn’t always find it easy to do that!!!  Also lets not forget what a disruptive and emotional year we have all had!!!  He was really proud of himself and his achievement which made it even better XXXX  So schools out for the summer (sing that bit!), what are our plans???  Staying well, camping, fishing, beaching, playparks, activities and lots of free time..

I have decided to do a bit of a photo diary to fill you all in on our summer so far, Mia as you will see has been on great form, even steroid week has been fairly smooth!  Most importantly we have only had to go to the hospital for planned appointments, no mad high temperature panic visits ;-}

Photo Diary starts with a Visit to Barton Manor with Grandad Don Don at the end of July.

 

And now for our camping trip (just 5 miles down the road!) with Auntie Sam, Caleb and Jack.  We had a really lovely week, the weather was very changeable but we were so close to the beach (2 mins) that we were able to make the most of all the sunny moments.  The children loved having each other for company, and it is definately something that we will all do again, despite how tiring it was at times.

And as if Camping wasn’t tiring enough we had our Race for Life event in the middle of our holiday!!!

Mum (Nana) and Gary, and Gemma arrived on Saturday and had a BBQ with us at our campsite.  Gemma stayed with us in the tent whilst Mum and Gary had the comfort of my house…. At 10am on Sunday morning we were in the pink and heading into Newport to complete our 5KM run.  The Run was fun, emotional and a little bit tiring but we all completed it together in 41 minutes and I even carried Mia, our inspiration, for the last 1000 meters.  Thank you to everyone who has sponsored us, we were very proud to raise over a thousand pounds between the four of us. 

 

 We had a really lovely family lunch before heading off in our different directions again, with most of us back to a tent!  Mum was off to France and Gemma had to head back to London but it was a fantastic weekend.  

On 30th July we packed up our tent and headed for home.  Mia had had her Vincristine and started on her steroids and was obviously washed out with all the activities during our holiday so we really did very little other than watch TV for the next few days.  Harvey went to stay with Sam, Dan, Caleb and Jack and did a summer Tennis club with the boys in Hove Park which he loved and we went and picked him up last Wednesday and rolled in a 3 night stay at Grandmas which was really nice and relaxing. 

On our return from Grandma’s we decided that it was time to harvest our crops!  We have had a veggie patch in the garden this year and everything was ready for eating.  Harvey and Mia went from bickering and whinging to having a ball pulling up leeks, spring onions, onions, potatoes and cutting down sweetcorn plants.  Our lunch was homemade leek and potato soup.. Mia’s favourite and for tea we had a BBQ of chicken and vegetable kebabs, sweetcorn and frech couscous salad, YUM.

And finally, big news:

Harvey is 8 years old today …. His presents included lots of money from grandparents and friends, an Xbox, a new bike, some lego and lots of balls..football, rugbyball and basketball.  He’s had a friend over for the day and we have been out for lunch and to Magic Island (softplay). 

 

Mia’s bloods were good on Monday and she continues on her daily chemotherapy tablet, all being well we are looking forward to another camping trip on the Isle of Wight, this time near Sandown from Monday to Friday next week with Sam, James, Herny and Bella. 

I promise not to leave it so long before the next update, thank you for checking in XXXXXXXXX

7 Responses to “Your long awaited update is finally here….”

  1. Denyse Ridley Says:

    So nice to hear all your news and great to hear you have had a fun time. I have been following your bolg for sometime, our daughter was only 19 months old when she was first diagnosed, she is now a happy, health 4 year old. We are still having 3 monthly checks, till next year and then 6 monthly for another year, then yearly until she is 20. By that time she will be taking me for my hospital appointments!!!!!!!!

    Look forward to hearing more good news and photos.

    Take care
    Denyse
    New Zealand

  2. Stuart Says:

    Hello all! Well what a fantastic update. The photos of everyone are brill and sooo pleased you raised the amount you did. Mia is such a inspiration and also Harvey in how he’s dealt with everything over the year and still done well at school (unwaviering praise to parents too).
    When ever I come to everybody loves Mia I always get stuck for word and away become quite emotional.(must be my age).
    Well mia you carry in being so amazing to everyone and have plenty of fun.

    All my love
    stu x

  3. tessa Says:

    FABULOUS!!!!!!!!!! SO GOOD TO SEE YOU ALL HAVING FUN ALONG THE DIFFICULT JOURNEY. MIA YOU ARE GORGEOUS AND HARVEY, YOU HAVE ACHEIVED AN AWARD AT SCHOOL THAT IS TRULY BRILLIANT AFTER ALL OF THE THINGS THAT HAVE BEEN HAPPENING LATELY. BELATED HAPPY BIRTHDAY HARVEY…… THE VEG WERE PRETTY IMPRESSIVE TOO….
    MICHELLE…THE LAST LEG OF THE RACE FOR LIFE CARRYING MIA MUST HAVE BEEN TRULY POIGNANT AND EMOTIVE… BUT JUST SO AMAZING……. LOTS OF LOVE TO YOU ALL. PS FAV PIC MUST BE MIA SPECTATING WITH SCOTT….BEAUTIFUL. XXX

  4. Grandma Says:

    Hello all,

    Great update Shell and some lovely happy pics.

    I did so enjoy having you all to stay and getting my house trashed in the nicest possible way, toys everywhere !! Great seeing Sam,Caleb and Jack in what must be one of the best playparks ever, across the road from Toys’rus and spending time choosing Harvey’s birthday lego kit, followed by lunch in Burgerking.

    Oh yes, almost forgot to mention that Tyler (Tracey’s 15 month old ) is totally in love with Mia and went home after their visit and told Tony all about it. I’m not sure if Mia kissed him or let him kiss her but the effect was the same either way. According to Tyler, Harvey is ‘Arbey. It is so much fun watching little ones interacting with each other and learning from it.

    ‘Grandma Heaven’, especially since the good news of the remission, though maintenance is, of course, ongoing. Thanks Denyse in New Zealand for the positive input, so good to hear.

    Love to all,

    Grandma. XXXXXXXXXXX

  5. Polly, Mima's Mum Says:

    Really pleased to hear Mia is so well and a very happy birthday to Harvey!
    Camping on the Isle of Wight looks great fun – we will have to try it next summer.
    Mima is doing really well and she has just over 2 months until the end of treatment so counting down now. Steroids and Vincristine tomorrow so we are shutting the curtains for a few days!
    Keep well and happy
    Polly

  6. Sarah Gray Says:

    Wow Michelle – what fab photos – Mia looks absolutely gorgeous in every one of them!! I can’t believe it’s been nearly a year since Mia was diagnosed. You are all such an inspiration to everyone to live life to the full!!

    Sarah x

  7. Hazel Gibbs Says:

    Hi Michelle and Scott

    I have been following Mia’s tale and it’s really great that she is doing so well. For all her problems, she always looks so happy in her photos, all credit to you for keeping her life, and Harvey’s, as normal as you could, despite all the obstacles fate has thrown at you. Hopefully things will be easier now, and I wish you all the luck you need.

    Lots of love

    Great Aunt Hazel (Grandma Irene’s sister)

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